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April 14, 2007

Comments

Sela

I agree--if someone could try to contact the photographers listed on Petrica's web site (they're from the Discovery Channel) maybe we could find out if he is getting any help....

historianita

The Discovery Channel show about Ion is supposed to air this month. Has anyone seen news of when it will air? Maybe he'll be a segment on Incredible Medical or one of those shows?

James

Finally some good news for Dede. http://www.sundaymirror.co.uk/news/sunday/2007/11/04/i-m-half-man-half-tree-98487-20058521/

"Now medical experts in America say they may be able to help Dede by producing a cure specifically for him.

Dr Anthony Gaspari, chairman of the Department of Dermatology at the University of Maryland School of Medicine in the US, is fascinated by Dede's condition.

"I was absolutely stunned," said Dr Gaspari. "I'd never seen anything like this before.

"I've become really interested in his case because it's so absolutely unusual. The growths he has are just something we don't encounter in clinical medicine."

Dr Gaspari took samples of Dede's growths and has now been able to diagnose his condition.

He believes Dede has an extremely rare genetic disorder which means his immune system does not function properly.

This is why his body was never able to recover from the initial outbreak of the growths, which are actually warts, caused by the human papilloma virus (HPV). Dr Gaspari is now working on developing a unique cure for him."

Sela

http://www.discoverychannel.co.uk/myshockingstory/halfman/index.shtml

Here's a link to the promo in Britain about the Discovery special on Dede and Ion. It looks like it focuses on Dede; I bet that's because Ion was getting treatment already and it wasn't as "sensational."

In fact, the promo makes it seem like the whole disease is a mystery, when in fact, it's pretty clear what the diagnosis is to any of us who have been following this. At least he will get some help.

Misinformed Consumer of the Sensational

So "sensational" and also much more severe.

"My Shocking Story will also meet a man in Romania of a similar age and a similar condition. He seems to have been treated, and his condition eased. Now he can hold a pint, and even drive his tractor, one-handed. But was his surgery really in vain, giving him false hope?"

Sela

Misinformed, the Ion I refer to in my comment above is one and the same as the man from Romania mentioned in the quote you republished from the Discovery Channel.

Jeff

Please check out this article as it may be of some help.

Tree man 'who grew roots' may be cured

http://www.freerepublic.com/focus/f-news/1924908/posts

Gene

I'm just a layman.

But looks like Ion Toader and Dede from Indonesia (and others with Lewandowsky-Lutz) need their immune system reinforced.

Even with all the risks involved... other than genetic therapy, what will help?

I pray they have enough time.

Cheeshead

Simmilar case, a guy from Indonesia:
http://www.telegraph.co.uk/news/main.jhtml;?xml=/news/2007/11/12/wtree112.xml
Tree man 'who grew roots' may be cured
After testing samples of the lesions and Dede's blood, Dr Anthony Gaspari of the University of Maryland concluded that his affliction is caused by the Human Papilloma Virus (HPV), a fairly common infection that usually causes small warts to develop on sufferers.
Dede's problem is that he has a rare genetic fault that impedes his immune system, meaning his body is unable to contain the warts.

The virus was therefore able to "hijack the cellular machinery of his skin cells", ordering them to produce massive amounts of the substance that caused the tree-like growths known as "cutaneous horns" on his hands and feet.

concerned

This guy appears to have the same condition as someone in Indonesia (dubbed "tree man") http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2007/11/14/wtree114.xml

The American doctor treating him thinks it may be growths caused by the Human Pappiloma Virus in tandem with a genetic disorder compromising his immune system.

Maybe you should put this missionary in touch with the American doctor, Dr Anthony Gaspari from the University of Maryland medical centre: agasp001@umaryland.edu

Amstaff

I too feel sorry for this guy, seriously.

But still, we┬┤we got other things to cure to, Diabetes, Cancer, you name it!

Suddenly all scientists / doctors / medical experts want to help this poor dude, what about all the other humans in this world that needs medicines and cures?

Diabetes for an example has been known for ages now, still there is no "ice braking" medical treatment, we can fly humans to the moon and back, but we cant beat smelling socks / shoes..

sela

Concerned, the link between the two men has already been made; both are in the BBC documentary and both have been diagnosed with the same thing. Ion is under the treatment of doctors in his country. I'm glad that De De is getting help.

AnonyMoose

http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2007/11/12/wtree112.xml

This is an article documenting a similar-looking case, which may or may not be caused by the same contition and causes.

Sela

http://www.thebalitimes.com/2007/11/23/indonesia-may-stop-tree-man-being-treated-in-us/

Unfortunately, it looks like Indonesian authorities, perhaps for reasons of national pride, are forbidding DeDe to travel to the U.S. Their statement about the taking of blood samples, it it's true, is just ridiculous. Why would they take that position, i.e., that people don't want their blood samples taken?

S.D.

have you heard of the tree-man in Indonesia and Dr.Anthony Gaspari ?
It seems to be the same story. You can have look on the web.
http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2007/11/12/wtree112.xml

Sela

Looks like there was some pressure on the Indonesian authorities. They've formed a team that says it will cooperate with Gaspari to treat Dede. Thank goodness!

keyasha

i think i can help with waht is happening to taoder he has what is called a rare genetic fault that impedes his immune system, meaning his body is unable to contain the warts.
The virus was therefore able to "hijack the cellular machinery of his skin cells", ordering them to produce massive amounts of the substance that caused the tree-like growths known as "cutaneous horns". i know this because a many in indonesia has the same thing but his is worse his name is Dede and he contracted the "cutaneous horns" from a cut on his knee by a tree when he was 14 trs old now he is 35 he grew trelike limbs because of his rare virus of his immune system and im thinking that toader might have the same thig check out Dedes story on www.youtube.com and search tree disease and alot of videos will come up of his story if i can be of anymore help contact me at my email address

Eric

Great news! I've just seen some new pictures of Ion. He's regained the full use of his hands!!!!! He's show with near normal hands, working with tools and getting on a bike. The pictures are on a Romanian tabloid news site so I can't put up the link as its slightly NWS. However, google around and you'll find it in a few seconds.

Sela

http://www.click.ro/actualitate/iata-cum-arata-acum-mainile-omului-pasare
Here's the link to the story with the good news about Ion. Thanks, Eric.

Re. the suggestion that "because Romania was behind the Iron Curtain, things have developed there more slowly..." -- Romania was a neo-Stalinist regime so far out there that even the USSR eschewed attempts to seriously influence it. In the former "East Bloc" nations, this man would have had access to medical treatment at no personal cost to him. Now he finds himsefl without health insurance that will cover this problem. So, it is not that a capitalist econmy is making things "develop faster," it is that the unfettered, rapacious gangster economy which erupted upon the demise of the Soviet model, has resulted in a severe loss of basic necessities for the masses. With regard to Romania, however, it is indeed likely that this man would have been largely ignored by the late Ceaucescu regime, which tended to institutionalize what it considered to be "defective" citizens, rather than providing them with full and free health care.

Eric

Some video of Ion has appeared. It looks like the warts are in total retreat. The skin on the back of his hands is returning to normal without the need for grafting and his feet are also returning to normal. I'm sure now Ion can look forward in the new year to further improvement in his condition and the prospect of getting a job so that he can lift himself and his mother out of their poverty. This is just a good story and everybody involved, from his mother to the journalist to the doctors who worked on him, showed great human decency. This must also give great hope for Dede.

http://www.acasatv.ro/noutati-acasa/emisiuni/la-povestiri-adevarate-omul-pasare-va-duce-in-curand-o-viata-normala.html

Sela

(Click my name for a link to the index of the two blog posts.)

Two blog posts -- I presume from an Indonesian blogger -- that include photos and posts to news stories of Dede after the warts were removed surgically:
http://www.pelopor.nl/2008/dede-treeman-from-cililin/
http://www.pelopor.nl/2008/update-dede-tree-man-from-cililin/

Here are some of the links that blog links to:
http://foto.detik.com/index.php/detik.read/tahun/2008/bulan/01/tgl/24/time/173548/idnews/883753/idkanal/157/id/2

Sela

Click on "Sela" below for yet more photos of one of Dede's operations.
http://foto.detik.com/index.php/detik.read/tahun/2007/bulan/12/tgl/18/time/111550/idnews/868606/idkanal/157/id/1

gross

Zbyszek

Very similar case: http://www.telegraph.co.uk/news/main.jhtml;jsessionid=MLYGYKBGOGQ2DQFIQMFSFGGAVCBQ0IV0?xml=/news/2007/11/12/wtree112.xml

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